Advocacy & Awareness

 

Neurological Health Charities Canada (NHCC)

 

In 2008, a new coalition, called Neurological Health Charities Canada (NHCC), was formed by Voluntary Health Organizations that represent specific neurological diseases/disorders from across Canada in order to serve as one voice to provide a stronger sense of community and influence for positive change for those persons affected by Neurological Diseases.

 

The NHCC rapidly evolved into an effective organization that has obtained financial support from both the Federal and Ontario governments for two important projects concerning the incidence and management of the disabilities caused by chronic neurological conditions.

 

Because CNSF and the NHCC have almost identical objectives, the CNSF accepted the invitation to join the NHCC and to channel its current advocacy efforts though that coalition. The CNSF will continue its internal advocacy efforts through its Advocacy Committee.

 

 

 

 

The Government of Canada has announced $900 million in funding to 13 universities/ postsecondary institutions through the Canada First Research Excellence Fund (CFREF) including $183.3 million to brain health research - Sept. 10, 2016

If you haven’t seen the announcement already, you can see more details here.

Three of the projects relate to brain health:

The McGill University and Western University projects are most immediately applicable to NHCC member organizations. Those institutions have said the projects will work in partnership with each other to extend their reach. The Western University news release stated the funding will “leverage complementary expertise to better understand disorders such as Parkinson’s, Alzheimer’s, traumatic brain injury, and schizophrenia.”

 

 

 

The CNSF as part of the NHCC is pleased to announce that a Landmark Report could help Canadians affected by brain conditions remain employed says leading brain health coalition - June 2016

Neurological Health Charities Canada (NHCC) applauds the findings in a landmark report by the Institute on Research and Public Policy (IRPP) including the call for a new and collaborative approach to Canada’s income, disability and employment support systems. To view this full report please visit the following links;

  • Leaving Some Behind: What Happens when Workers Get Sick - available at www.irpp.org

 

 

 NHCC – “Day on the Hill” - March 2015

Neurological Health Charities Canada held the NHCC “Day on the Hill” on March 24, 2015 and it was an excellent event.  In total there were 28 meetings with Parliamentarians and policy staff. Overall participants reported on the policy paper Canadian Brain Health: Driving Research to Action and the four proposed solutions generated great interest and discussion and enabled the NHCC to get useful advice in moving forward.

Canadian Brain Health: Driving Research to Action is now posted online and available at the following links: http://www.mybrainmatters.ca/en (English) and http://www.mybrainmatters.ca/fr (French). 

 

 

 

The National Population Study of Neurological Conditions - Sept 2014

Landmark study reveals impacts of neurological condition on Canadians.

Canadians with neurological conditions, caregivers and representatives from Neurological Health Charities Canada celebrate the completion of a first of its kind Canadian study

Mapping Connections: An understanding of neurological conditions in Canada

 

 

 

The National Population Study of Neurological Conditions - Sept 2012

The National Population Study of Neurological Conditions is a 4-year project funded by the Government of Canada. Oversight for the study comes from an Implementation Committee comprised of representatives from the Government of Canada’s health portfolio (Health Canada, CIHR, PHAC) and from the NHCC.   The Study was shaped with input from over 3,000 stakeholders across Canada and members of the Canadian neurological research community, of which over 50 individuals gave their time to participate on an Expert Advisory Group. Currently, oversight for the Study is provided by the Implementation Committee and the Scientific Advisory Committee.

On September 24-25, 2012, the Third Progress Meeting of the National Population Health Study of Neurological Conditions (NPHSNC) was held in Toronto, Ontario, Canada. With researchers, the Implementation Committee and the Scientific Advisory Committee present, attendees were provided with informative updates on the work that is currently underway across Canada.  Although the NPHSNC involves a suite of projects focused on the incidence and prevalence, impact, risk and health service utilization of our priority conditions, the final culmination of this work will result in a picture of the neurological landscape of Canada.  

Mapping Connections was developed and managed as a unique partnership between the Government of Canada and Neurological Health Charities Canada, a collaborative of 24 health charity organizations representing the voice of individuals and families impacted by neurological conditions across Canada.

For specific information on the studies, please visit http://www.mybrainmatters.ca/en/projects

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